Science offers the chance to cure debilitating and once-intractable disorders like hemophilia and sickle cell disease. But we need to make sure the ability to access these therapies, or the risk that someone can be locked out of them, doesn't widen gaps between the rich and poor.
Interpretation
Scientific advancements bring hope for curing diseases, but access must be equitable to avoid increasing inequality.
This quote emphasizes the potential of science to develop treatments for serious health conditions like hemophilia and sickle cell disease. However, it warns that without careful consideration and equitable access to these medical breakthroughs, disparities between different socioeconomic groups may grow, leading to increased inequality in health and wellbeing.
In practice
In a public health seminar discussing equitable access to healthcare advancements.
It is true that some off-label drug use is based on very unsettled science and has more risks. But medicine - and not just cancer care - involves lots of hard choices. And the more serious the disorder, often the more likely it is that for every right and wrong treatment choice there are many other practical decisions painted in shades of gray.
In fast moving fields like cancer, where doctors tailor treatments based on evidence that's constantly evolving, two years can be an eternity of waiting to learn about important science. For some patients, that interval can be fatal.
We need to make sure that access to a curative drug doesn't become a yardstick by which poverty is eventually measured. Doing so requires a shared commitment between innovators and the insurance plans that are harder pressed to offer these advances to the poor.
We must be careful not to confuse data with the abstractions we use to analyse them.
Data, I think, is one of the most powerful mechanisms for telling stories. I take a huge pile of data and I try to get it to tell stories.
...It would be possible to make much more progress than has been made if the NCI knew its job better, knew how to make discoveries...The NCI really does not know how to make discoveries....So long as the NCI is not willing to follow up ideas that seem good to people who have had experience making discoveries, the work of the NCI is going to be pedestrian.
Measure what is measurable, and make measurable what is not so.
Extinguished theologians lie about the cradle of every science as the strangled snakes beside that of Hercules; and history records that whenever science and orthodoxy have been fairly opposed, the latter has been forced to retire from the lists, bleeding and crushed if not annihilated; scotched, if not slain.
Just as computer technology and the Internet created whole new industries and extraordinary benefits for people that extend into almost every realm of human endeavor from education to transportation to medicine, genetics will undoubtedly benefit people everywhere in ways we can't even imagine but know will surely occur.
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